Personal Stories
Learn about life with Myasthenia Gravis (MG) firsthand. On this page, real people share their stories: from the long journey to diagnosis to adapting to the realities of daily life. These candid accounts are here to help you feel less alone, find inspiration, and discover useful tips. See how others cope with challenges and continue to live a full life, and feel the support of our community, where every voice matters.
As a caregiver, you need to stay positive and keep your charge from falling into despair.
So, while I’m panicking on the inside, I’m trying to be positive and calm on the outside.
I retired at 58 years old from CAA Niagara on October 1st 2021 after 40 years with my last role being Vice President of Automotive Services. I was ready to spend time with my wife enjoy travel, or kids and grandkids and become one of those with snowbirds in the south.
Much of my work has centered on understanding and improving the lived experiences of people with chronic neuromuscular conditions, including MG—whether through direct care, clinical research, qualitative inquiry, or developing educational resources for patients and health professionals
From Personal Pain to Community Strength: Linda’s Story
Support from the people in my life is a big help: Paul’s Story
Supporting a Spouse With Myasthenia Gravis: Tara’s Story
Good Days and Bad Days are Very Different: Kathy’s Story
Good Support Means Patience and Understanding: Brock’s Story